Disturbedcomputer

Join Date 02/2007

+137

DELETE THIS POST it is Obsolete Brilee Needs a Heart transplant

My Niece

Brilee Needs a Heart transplant

I am writing to you all in hopes you will send Brilee a Get Well soon card.

Brilee is my Great Niece; she was born November 29^th 2010, at Children's Hospital in St. Louis, Missouri

She has;

HLHS which is Hypoplastic left heart syndrome

Critical AS; bicuspid aortic valve, dilated LV with poor Function, moderate EFE of the LV, arch hypoplasia.

Intraoperative SVT, which progressed to ventricular tachycardia and ventricular fibrillation, on Digoxin.

Pre surgery large thrombi x2 noted within Left ventricle. Treated with lovenox therapy.

Tricuspid Valve regurgitation (post-operative).

at 10-days-old

On December 9^th Brilee had surgery; s/p Norwood reconstruction including an atrial septectomy, division of the patent ductus arteriosus, and placement of a right modified Blalock-Taussig shunt using a 4.0mm Gore-Tex graft.

On January 18^th Brilee was life lifted to Children’s Hospital in St. Louis Missouri

She has passed the entire test to be placed on the Transplant List Monday 23^rd January. She is an a1 on the list.

Today they took her off the Respirators at 1pm for the 4^th time this time Brilee crashed she is now stable and they have her on life support tomorrow Wednesday 26^th I hear they will run test to see if she has suffered Brain Damage, If she did they will remove her the Transplant List…

PLEASE send Brilee get well cards… she will be 8-weeks-old January 29^th 2011

St. Louis Children's Hospital

Brilee Marriott Rm 7

One Children's Place St. Louis, MO 63110

I know this will greatly lift my niece Jennifer and her Fiancé Sean spirits up..

Thank you.

Pictures

http://www.facebook.com/album.php?id=100001591729901&aid=20978

or

http://www.myspace.com/disturbedcomputer/photos/albums/brilee/1604516#mssrc=SitesPhotos_SP_AlbumCover_ViewAlbum

Videos

http://www.facebook.com/video/video.php?v=135961053133618

http://www.facebook.com/video/video.php?v=133055596757497

http://www.facebook.com/video/video.php?v=132953656767691

Edited

DrJBHL made a post here

A Get Well Thread For Brilee

Thank you Dr.JBHL

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i send all my thoughts and prayers to Brilee and hope she is able to have the transplant as soon as possible. Hugs from down under :0

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DrJBHL

Join Date 04/2002

+4285

Lots of Hope and Love from Doc and all here!

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The photos are heartbreaking. My prayers and thoughts are with this precious little girl.

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Philly0381

Join Date 11/2004

+844

Brilee and her family are in my thoughts and prayers.

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WebGizmos

Join Date 09/2003

+735

Aww man....I hate seeing little ones going through something like this. Best wishes to Brilee and her family.

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Get well soon, sweet little darling. I'll buy and mail a card very soon

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Brilee and her family will be in my prayers. God bless the family.

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Vampothika

Join Date 07/2006

+590

what a little darling........all my love and best wishes xxxxxx get well soon.

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Well wishes to little Brilee. I think if anyone can make it she can. Her support group are superb. And get some sleep everyone.

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coffeegrinder

Join Date 12/2001

+136

Hope everything goes well for Brilee, my thoughts and prayers are with her and all the family.

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gmc2

Join Date 11/2003

+296

In our thoughts and prayers

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starkers

Join Date 05/2004

+1153

Here's hoping all turns out exceedingly well for this little treasure and her family

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starkers

Join Date 05/2004

+1153

oops, double post somehow,

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mrs_starkers

Join Date 09/2006

+556

in our thoughts and prayers, get well soon

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Uvah

Join Date 05/2006

+874

All best wishes to Brilee and family. Hope to see her smile big. God bless.

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Disturbedcomputer

Join Date 02/2007

+137

Update

The doctors are saying, she is doing good and by the looks she has not suffered Brain Damage but they still have to run test over the next few days...

Brilee is fighting the Life support machine (I take that as I good Sign).

I want to thank all of Wincustomize for all the prayers and wishes THANK YOU..

To a moderator if this is inappropriate please just remove

If you would like to Donate to the:

Brilee Heart Foundation please make checks and Money orders out to > Brilee Heart Foundation < ...

Mailing address;

10937 Richards Ct.

Lenexa, Kansas 66210

in the weeks. to come Direct deposit will be available... Thank you for your Support. Even One Dollar can help..

To the skinners, wallpaper, Icons Makes...

I would like to ask you if you would Donate your time, Talent to make a Logo that I can use for the > Brilee Heart Foundation <

this is a Non-for-profit Foundation. My idea is an Heart behind the word Heart... but please if you will do this you are more then free to come up with something else... the logo would be used with the Name.. I also plan for the > Brilee Heart Foundation < to move forward and start to help other parents out but I just got it started yesterday..

Thank you..

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Uvah

Join Date 05/2006

+874

Can I google a heart? My graphic skills aren't quite that good.

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Disturbedcomputer

Join Date 02/2007

+137

I Can google a heart?

that's cool but I don't know if I could legally Use it.

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so unfair for littluns to get off to such a rough start.... she seems like a fighter.... best wishes to her...and her parents who I really feel for having to watch their little daughter so ill.... keep the faith.....

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Uvah

Join Date 05/2006

+874

According to the website they are free clip arts. I should make sure first I guess or try to make one. Probably safer.

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Disturbedcomputer

Join Date 02/2007

+137

According to the website they are free clip arts.

Duh I should have known that don't ask me what i was thinking

try to make one. Probably safer.

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Our thoughts and prayers go with her and all the family and friends.

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WebGizmos

Join Date 09/2003

+735

Update

The doctors are saying, she is doing good and by the looks she has not suffered Brain Damage but they still have to run test over the next few days...

Brilee is fighting the Life support machine (I take that as I good Sign)

That's great to hear DC!

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Disturbedcomputer

Join Date 02/2007

+137

Update Jennifer (Brilee's mom My Niece) called and told me they took Brilee off the life support... so she is doing much better..

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All best wishes to Brilee and family.

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DELETE THIS POST it is Obsolete Brilee Needs a Heart transplant

My Niece

She has;

HLHS which is Hypoplastic left heart syndrome

Critical AS; bicuspid aortic valve, dilated LV with poor Function, moderate EFE of the LV, arch hypoplasia.

Intraoperative SVT, which progressed to ventricular tachycardia and ventricular fibrillation, on Digoxin.

Pre surgery large thrombi x2 noted within Left ventricle. Treated with lovenox therapy.

Tricuspid Valve regurgitation (post-operative).

at 10-days-old

On December 9th Brilee had surgery; s/p Norwood reconstruction including an atrial septectomy, division of the patent ductus arteriosus, and placement of a right modified Blalock-Taussig shunt using a 4.0mm Gore-Tex graft.

On January 18th Brilee was life lifted to Children’s Hospital in St. Louis Missouri

She has passed the entire test to be placed on the Transplant List Monday 23rd January. She is an a1 on the list.

Today they took her off the Respirators at 1pm for the 4th time this time Brilee crashed she is now stable and they have her on life support tomorrow Wednesday 26th I hear they will run test to see if she has suffered Brain Damage, If she did they will remove her the Transplant List…

PLEASE send Brilee get well cards… she will be 8-weeks-old January 29th 2011

St. Louis Children's Hospital

Brilee Marriott Rm 7

One Children's Place St. Louis, MO 63110

I know this will greatly lift my niece Jennifer and her Fiancé Sean spirits up..

Thank you.

Pictures

or

Videos

On December 9^th Brilee had surgery; s/p Norwood reconstruction including an atrial septectomy, division of the patent ductus arteriosus, and placement of a right modified Blalock-Taussig shunt using a 4.0mm Gore-Tex graft.

On January 18^th Brilee was life lifted to Children’s Hospital in St. Louis Missouri

She has passed the entire test to be placed on the Transplant List Monday 23^rd January. She is an a1 on the list.

Today they took her off the Respirators at 1pm for the 4^th time this time Brilee crashed she is now stable and they have her on life support tomorrow Wednesday 26^th I hear they will run test to see if she has suffered Brain Damage, If she did they will remove her the Transplant List…

PLEASE send Brilee get well cards… she will be 8-weeks-old January 29^th 2011